Thursday, July 1, 2010

Meet our new friend........


SABRIL





Under normal circum-stances I am NOT one to count my proverbial chickens... you know how it goes. I will admit, I am one who traditionally worries about the 'what ifs'. That said, today was a VERY GOOD DAY! We deserve to celebrate it! For the last two days, her clusters of spasms have been better. She is still having them, but they are nearly undetectable - to the untrained eye, that is. She has been...get this...awake, alert, SMILING, squealing and today, in like five minutes time, she learned how to eat! Yup - you heard it folks - she is EATING FOOD before her first birthday!!
(No, she is not feeding herself, but likes to play with the spoon while she eats). She is also sitting up in this chair with only the aid of a seat belt, tray and a couple towel rolls. THAT is amazing in itself!!


We had an awesome eval with an actual, real live rehabilitation physician who was incredible! She is getting us hooked up with absolutely everything we could ever need. For starters, M is sporting a "Johnny Cool" (yes, that IS it's real name) thumb splint - VERY stylish. Amazingly, her little hand is open and relaxed, not clutched into a tight, painful, little ball. The clonus in her left leg is a little worse and she is now showing it in her right leg as well. Previously her entire right side appeared unaffected. For now, because of her small size, we're holding off on braces, but they will most likely come down the road. We are going to up her stretching and PT to try and keep her a little looser.

To top it all off, she has been sleeping - ALL NIGHT LONG!!!!

I know to the mom with an "average" child, these things seem trivial, but to me - they are incredible miracles!!

We're praying we continue to see improvement or at least stability for a while.

I just bounced back to read THIS. As I said back then: BRING IT!!!!!

7 comments:

Betsy said...

Fantastic news!!! Hey, I think it's important to celebrate every victory - and these are huge leaps & bounds that your sweet girl is making! Can't wait to continue to read about her progress!!

Kimberly said...

Shannon - that is just plain awesome! Praying for continued healing and lots of new firsts!
Kimberly

Michelle said...

hurray! I love it...come on Sabril and your amazing little fighter!

Cindy LaJoy said...

What wonderful news! It is about time that your patience and love are rewarded! She will make remarkable strides, and your continued love and encouragement make all the difference in the world. She LOOKS so much more "with it" in these pics! Glad for the happy days!

Jackie said...

I am so happy to read this. There are certainly many reasons to celebrate and enjoy ... she is one little fighter :)

High Heeled Life said...

That is fantastic news!!! So happy for all of you! sending you hugs from Canada!! HHL

Linda Schuhmacher said...

What wonderful news!! I just love reading all your posting & following your family's journey. Thank you for sharing! Continuing to send prayers.... :)