Sometimes life doesn't go according to plan. Sometimes you find yourself on a road you never imagined you'd travel. Sometimes it can scare the pants off you. This is the story of how our little family came to be, continues to grow and how we (attempt to) manage the chaos.
Wednesday, February 29, 2012
Tuesday, February 28, 2012
Sunday, February 26, 2012
Saturday, February 25, 2012
Friday, February 24, 2012
Thursday, February 23, 2012
Wednesday, February 22, 2012
Tuesday, February 21, 2012
Photo-a-Day 21 Skin Testing
I didn't have my camera with me today so this is (quite obviously) not Marissa's arm. She saw her new pulmonologist/allergist today, who is also wonderful - we sure do luck out with the docs! She has a severe allergy to dogs and cats and is NOT allergic to milk (YAY no more soy). While he feels that a medication could help her when/if she has a brief encounter with a dog or cat, living with them is simply not an option. Her lung function is being compromised. She has asthma and BPD and it is getting worse. She is currently on two nebulized medications and he has added another oral medication until we can get things under control (i.e., until there are no longer dogs in her daily living environment). We have two dogs, who are both pretty old.....anyone out there looking for new four-legged friends?
Monday, February 20, 2012
Sunday, February 19, 2012
Photo-a-Day 19 The joys of paper
Marissa loves paper! She loves to tear it, shake it, crumple it, play with it; and thankfully a couple of weeks ago stopped eating it. I think a lot of kids go through the paper tearing stage and since she only has use of one arm, the only way she can tear it is with her mouth. Now that she's not eating it, we can let her tear and rip and play to her hearts content!
Saturday, February 18, 2012
Photo-a-Day 18 A few more pieces
Last year, in June to be exact, we learned that we could file a petition with USCIS to obtain the packet of super secret sealed documents that we presented to Immigration when we arrived in Chicago with Esen. Shortly after filing all of the required proof of identity, we received the packet. It contained all of the originals of the documents we already had. Unfortunately, there was nothing new. Sometimes families have gotten a few extra pieces of info about their kiddos or birth families. I haven't thought about it since.
Today we got this from USCIS.
On it is a cover letter which explains "......we have concluded our investigation and search for documents.....included is 101 pages of documents pertaining to your son's adoption....." COOL! It is every single document we filed with USCIS, every document that was generated by them, every document that was filed in Kyrgyzstan, including a few we didn't have.
As any adoptive parent knows, when you have no information about your child's history, every single piece is so priceless. And really, how cool is it that it's neatly organized on a CD. Thank you USCIS - today, we are friends.
Today we got this from USCIS.
On it is a cover letter which explains "......we have concluded our investigation and search for documents.....included is 101 pages of documents pertaining to your son's adoption....." COOL! It is every single document we filed with USCIS, every document that was generated by them, every document that was filed in Kyrgyzstan, including a few we didn't have.
As any adoptive parent knows, when you have no information about your child's history, every single piece is so priceless. And really, how cool is it that it's neatly organized on a CD. Thank you USCIS - today, we are friends.
Friday, February 17, 2012
Photo-a-Day 17 Scary to Sweet
Apparently I suck at this photo-a-day thing. Yesterday was pretty much one of those days where I just managed to get through and that was about it. Marissa had an epic bad day - like probably the worst on record. Her bad days have thankfully decreased in number thanks to her intervention team, but unfortunately the severity of her behaviors has continued to escalate. Days like yesterday are a reality check for me; they make me wonder how we're going to handle things as Marissa continues to get bigger and stronger. She has some behaviors that are very violent. I spent a solid 10 hours yesterday just trying to keep her from hurting herself. Add to that the stress of not knowing why. I can't just write it off to her being a sassy 2 1/2 year old or maybe coming down with a cold. I have to think about three cranial shunt catheters and four valves, seizure activity, a gall bladder shunt, and the myriad of potential complications that could be happening inside her little body. My wheels begin to turn, I begin to feel panic and she probably feels my stress, too. By the end of the day yesterday, I was completely and totally spent.
Today, she is better. I have no explanation for what was going on yesterday. I guess it doesn't really matter because it has obviously passed and that means that for now, shunts are fine and seizures are stable. Today - she is happy and that makes me happy.
Today, she is better. I have no explanation for what was going on yesterday. I guess it doesn't really matter because it has obviously passed and that means that for now, shunts are fine and seizures are stable. Today - she is happy and that makes me happy.
Wednesday, February 15, 2012
Tuesday, February 14, 2012
Monday, February 13, 2012
Sunday, February 12, 2012
Photo-a-Day 11&12 A Slideshow!
Well, I made it 10 days before slacking and missing a day - better than I thought I'd do! To make it up to you, I'm going to share a slideshow that I put together shortly after we returned from Ethiopia in December. I watch it a few times a week and it brings me so much joy and still makes me cry. I miss my kids so much it actually hurts. I think about the last day we saw them and how they made us promise to hurry back for them. I think about how long two months feels to a 4 and 5 year old. I can't believe it's already been two months. I wonder how much longer it'll be.
So, grab a glass of wine and enjoy this 12 minute peek into our journey to Ethiopia and the sweetness that is the two, little souls we will soon welcome into our family. **Oh, but first scroll to the bottom of the page and pause my blog music**
So, grab a glass of wine and enjoy this 12 minute peek into our journey to Ethiopia and the sweetness that is the two, little souls we will soon welcome into our family. **Oh, but first scroll to the bottom of the page and pause my blog music**
Friday, February 10, 2012
Thursday, February 9, 2012
Wednesday, February 8, 2012
Photo-a-Day 8 Hearts For Hope
photo borrowed from creativestitchery.com |
Lifesong for Orphans
Attn: Rich Metcalf/Altynai's Fund
202 N. Ford St., PO Box 40
Gridley, IL 61744
You can also check out the Altynai's Legacy Adption Fund Blog for more info.
Tuesday, February 7, 2012
Photo-a-Day 7 Packed In
My husband works hard - really hard. He manages an extremely busy aircraft maintenance shop. He has to coordinate repairs and a team of guys and try to keep everyone (especially demanding customers) happy. Ultimately, if something goes wrong, it falls on his shoulders - and you don't want something to go wrong when your up in the air in one of these babies.
Monday, February 6, 2012
Sunday, February 5, 2012
Saturday, February 4, 2012
Friday, February 3, 2012
Photo-a-Day 3 Fear and Triumph
Two years ago today, death knocked on our door. I remember every second of that day. It's been a long journey back - full of tears, joy, fear, uncertainty, guilt and celebration. Not a day goes by that I don't remember those dark days we spent wondering "what if?" I'm so grateful we never had to find out.
Thursday, February 2, 2012
Wednesday, February 1, 2012
Photo-a-Day 1 What Hope Looks Like
I've been working really hard nesting like crazy the last several weeks (and driving Kevin crazy in the process)! We have made a ton of progress getting the house ready. We're all moved into our new room downstairs, the boys' room is nearly ready and the girls' room has three beds (yes three) all set up ready for cute, little princesses. Today, despite all of the sadness of the past week, despite all of the uncertainty, despite not knowing how in the world we're going to make it happen, I have hope; hope that someday very soon, I will make the rounds to all five of my children tucking them snugly into bed at night.
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