Thursday, November 8, 2012


I apologize for my absence and my silence.  After Marissa's last surgery, things were a bit of a whirlwind.  She recovered quite well and although the surgery didn't go as we had planned or hoped (when does it ever), we have absolutely nothing to complain about right now.  On October 20th, we came H.O.M.E.!!

Marissa is rounding out her last week of IV antibiotic infusions and preparing for a minor procedure next Monday.  She'll be having her G-tube converted to a GJ-tube because she's not been tolerating G-feedings and also will have a pH probe inserted for a 24 hour period of monitoring.  Other than little upper respiratory infection last week that her brothers and sister thoughtfully shared with her, she has been doing fairly well at home.  We have no idea what the future holds and I admit I have a very hard time not looking ahead.  We're trying to just live in the moment and enjoy every second we have.  Right now, we are choosing hope over fear. 

All the kids were able to go trick-or-treating together for Halloween.  All that candy was quite exciting for Bam and Hiwot! 

Last weekend, we were blessed to have our friend, Janiece come and take some family pictures and they turned out so beautifully!

I promise to update very soon!!


Michele said...

So happy to see that she made it this far. Keeping you all in our prayers.

Kimberly said...

So glad to hear the update, Shannon. I continue to pray for the whole family.
Any word on if you will ever be able to bring sweet K. home?