Friday, March 22, 2013

Thirty-One for Noodle

Marissa (aka "Noodle") was born at 25 weeks old on July 20, 2009.  She has endured more in her short life than anyone should ever have to endure.  Too many times, we were told that she wouldn't survive. Twice I've stood by and watched as a team of doctors and nurses fought to bring her back to life.  Too many times, we were told to prepare for the worst.  Too many times, we were asked how "far" we wanted to go. We have always opted to fight because SHE has always opted to fight.
Noodle struggles with very complicated diagnoses including:  Hydrocephalus, cerebral palsy, epilepsy, bronchopulmonary dysplasia, hemiplegia and cortical blindness to name a few.  She has endured 50 surgeries and has spent around 300 days in the hospital so far.  There is no cure for any of her conditions.  She works so hard every day to overcome the obstacles placed before her and she is living proof that miracles do exist.  She has been an inspiration to all who have met her and she brings a smile to the face of every person who is lucky enough to cross her path.
We have been given the opportunity through a generous grant to try an innovative treatment for Noodle that could not only relieve some of her pain and discomfort, but that also just might help give her some freedom by restoring some of the function she has lost.  The grant we received covers two-thirds of the total cost of treatment, but we need to fund the remaining one-third by raising an additional $2,000.  We owe it to our little fighter to give her this chance.
Thank you for considering supporting Noodle by participating in this fundraiser and by sharing it far and wide with friends, family, co-workers and anyone else you can think of.  Together, I know we can do this!
*Online at:  THIRTY-ONE for NOODLE - event closes 4/10/13.

1 comment:

Laura said...

Never a day goes by that I don't remember how lucky I ended up. My daughter born (and adopted at birth) the same gestation has BPD and nothing more. Your little fighter deserves a great life!