Surgery Update

For my readers who do not follow our adventures on Facebook, I am sorry for the delayed post.  Marissa's tonsillectomy/adenoidectomy, bronchoscopy/laryngoscopy, and ERG was yesterday.  She did as well as could be expected.  Her tonsils were 3 out of 4, adenoids 80% occluded.  Her airway continues to be stable with no new cysts and no need for additional dilation - great news!  Her eye exam and ERG was completely normal - also great news!  It was a lot for her little body to handle, that's for certain.  It took her an extraordinary amount of time to wake from surgery and then she slept most of the day.  When she did finally wake, it was with a vengeance.  She was quite violent all afternoon and overnight - thrashing around, biting, pinching, pulling her hair, and head banging.  She would pass out for brief periods, but then wake up again.  She wouldn't swallow at all and the mucous build-up was hard to keep on top of since they don't allow suction after a tonsillectomy.  As she's gotten older, it's also gotten much more difficult to be here.  She panics with every sound, every voice, every touch and unfortunately, sometimes we have nurses who don't know her and just aren't sensitive to her situation or respect her need for space.

This morning, it took about an hour and a half for me to get her meds into her and then 2oz of formula via syringe.  She has kept it all down, though.  After a wash-up and pj change, I got her up in her wheelchair and offered her some pudding.  She ate a few spoonfuls and seemed more content.  I think we'll be able to get out of here today.  I know they want to see her drinking better, but I know that she'll do a lot better at home.