Overall, Dr. I was pretty happy with M's status. He's a man of few words, but his expressions tell the story. He gave us another six month pass. Barring any "issues" she'll have an MRI and another visit next May. I completely forgot that he would have no idea about her IS diagnoses since she was diagnosed just after our last visit with him. She started having clusters of spasms just after her post-op hemorrhage in February and ALL THREE neurologists that followed her in the hospital repeatedly blew us off. They thought it was muscular, med-related, or just "healing". Therefore, it took three months to get an IS diagnoses. That's three months of unnecessary damage. At hundreds of spasms a day, that's a lot of damage to add to an already very damaged brain. Anyway, when I told him, he was so sad and so disappointed. He knows that her outcome could've been completely different had it been treated right away.
In spite of everything, I think although developmentally she's not where he was hoping to see her, he was thrilled to see her smiling, squealing, laughing and being silly. We're pretty happy, too!