Sometimes life doesn't go according to plan. Sometimes you find yourself on a road you never imagined you'd travel. Sometimes it can scare the pants off you. This is the story of how our little family came to be, continues to grow and how we (attempt to) manage the chaos.
Tuesday, April 5, 2011
We're baaaack.......
Miss Marissa decided last Friday's surgery postponement did not fit her schedule. She became increasingly irritable over the weekend to the point of being totally unmanageable by Monday morning. She was to the point where she was causing harm to herself (and me) from all of the head banging, biting, and hitting. A quick brain MRI revealed decreased ventricular size, however, a shunt tap revealed increased pressures. They removed about 30cc of CSF and after a long nap, she awoke a changed girl. She has been pleasant, happy, giggly ever since. Nonetheless, she was admitted yesterday and surgery is scheduled for tomorrow morning to convert her VP shunt to a VGB shunt. There is currently no plan to do anything with the three cranial shunts as they appear to be working fine (THANK GOODNESS)! Hopefully they can get in, place the catheter in her very lovely-looking gall bladder and get out quickly without incident. We were hoping her ENT would be able to participate in this surgery as she needs to have her airway explored again with another possible dilation and cyst removal, but he's not sure if the timing is going to work out with his other surgical cases tomorrow morning. We'll have to wait and see.
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2 comments:
Thinking about you guys and will be praying during surgery in the morning!
Sorry for the unexpected trip. Hope all goes well with the surgery.
Ruby
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